• TauZero@mander.xyz
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    3 months ago

    It’s unthinkable that CMS would violate the trust of Medicaid enrollees in this way

    Once again stolen medical records are being used for state oppression. In WWII, the Netherlands suffered 75% of their Jewish population killed - the highest of any country even Germany - because the invading Nazis made a beeline for the medical records archive where the government kept a meticulous track of all Dutch citizens. I never volunteer race or ethnicity on any such forms - there is no medical benefit, it can only come back to hurt you.

    • breakingcups@lemmy.world
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      3 months ago

      Close, but it wasn’t medical records but Population registration, a sort of census on steroids which kept meticulous details on every citizen in The Netherlands.

  • archiduc@lemmy.world
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    3 months ago

    That’s why France doesn’t have an ethnicity database and why t’s illegal to ask for it.

    • outhouseperilous@lemmy.dbzer0.com
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      3 months ago

      Straight answer:

      Shitlibs had to add means testing to all social programs and had to collect data saying xyz group was underserved and also had a data fetish.

      • anonymouse2@sh.itjust.works
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        3 months ago

        It can be helpful to be able to track medical trends within an ethnic group, or to focus on certain diseases that only affect a specific group (e.g. sickle cell in the Black community). Unfortunately, that same data in the wrong hands becomes a problem.

    • outhouseperilous@lemmy.dbzer0.com
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      3 months ago

      Straight answer:

      Shitlibs had to add means testing to all social programs and had to collect data saying xyz group was underserved and also had a data fetish.

      No of course this coukd never be abused; we made a law saying not to!

      • sleepundertheleaves@infosec.pub
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        3 months ago

        Alternate, less hostile interpretation:

        Non-white patients have across the board received worse medical care and had worst medical outcomes than white patients. The American medical system is racially biased. That’s not identity politics, that’s statistics.

        And you can’t effectively fight racial bias, or judge how well your efforts to fight it are going, if your data set doesn’t include information on race.

        Or, as the US government put it:

        Racial and ethnic disparities in health care and health outcomes have been well documented. Such disparities are particularly relevant for Medicaid given that more than half of the program’s 73 million beneficiaries identify as Black, Hispanic, Asian American, or another non-white race or ethnicity. Addressing disparities and promoting equity in coverage, access, experience, and outcomes among historically marginalized and underserved populations will depend in part on having complete and systemically collected data by race and ethnicity. Source.

        If you don’t measure it, you can’t manage it, as the saying goes.